For those of you anticipating access and help from this organization, be prepared for disappointment. My wife has been in horrible overall pain along with severe muscle spasms and contortions for 4 1/2 years now. She currently has to be in bed for over 20 hours a day as the symptoms are just too much to deal with. More recently she started showing symptoms of Tardive Dyskinesia. We have been to four local hospitals, seen countless doctors and specialists. The most recent Neurologist diagnosed her with Functional Dystonia…he thinks. Several nurses, doctors, specialists and ED doctors have suggested that we seek out the Mayo Clinic for the best help for her. We did. We went through the initial interview for fact gathering on their part. When we asked how long a response might take, the rep said they average around 25,000 requests a week. Three days later we received the attached computer generated response. Please note that we were willing to wait in line for an appointment, up to a reasonable point. But, instead, we’re basically tossed to the curb like garbage. No human response, no offer for a teleconference visit, no nothing. I guess we are all in the age of poor patient care anymore as this P.O.S. Organization has shown us. There is a special place in Hell for you people. Thank you allowing my wife to continue to suffer with no resolution for her symptoms. Hopefully this posting is helpful for others hoping for assistance.
